The Rex Griswold Foundation has created a social media challenge to help in the search for treatment and a cure for MSA.
An exciting and fun social media challenge has been started by the Rex Griswold Foundation to help raise awareness and funds for MSA (Multiple System Atrophy). The new challenge is being referred to as #DanceForMSA.
Multiple system atrophy (previously known as Shy-Drager Syndrome) is a rare and fatal disorder with less than 15,000 Americans diagnosed and 35,000 undiagnosed at any given time. MSA has no identified cause, disease-modifying treatments or cure.
According to the National Institutes of Health, “MSA affects both men and women primarily in their 50’s. MSA tends to advance rapidly over the course of nine to 10 years, with progressive loss of motor skills, eventual confinement to bed and death. There is no remission from the disease. There is currently no cure available.”
Research for MSA has been known to share important developmental characteristics found in Alzheimer’s, Parkinson’s, ALS and other brain diseases. Proceeds from “#DanceForMSA” will fund groundbreaking MSA research, including genetic studies at the Phoenix-based, non-profit Translational Genomics Research Institute (TGen).